Fighting HAE Together in Nepal

Hereditary Angioedema (HAE) Nepal is dedicated to improving the lives of those affected by HAE through awareness, education, and support.

Understanding HAE in Nepal

What is Hereditary Angioedema?

Hereditary Angioedema (HAE) is a rare genetic disorder characterized by recurrent episodes of severe swelling that can affect various parts of the body, including the face, limbs, intestinal tract, and airways. These attacks can be painful, debilitating, and potentially life-threatening.

HAE in Nepal

In Nepal, many HAE patients face significant challenges including limited access to specialized healthcare, delayed diagnosis, and lack of appropriate treatments. HAE Nepal was established to address these issues and provide much-needed support to the Nepalese HAE community.

Our Mission

We are committed to improving the quality of life for people with HAE in Nepal through advocacy, education, and support. We work to ensure that every HAE patient in Nepal has access to accurate diagnosis, effective treatment, and the resources they need to manage their condition.

250+

Estimated HAE Patients in Nepal

8

Years Average Delay in Diagnosis

30%

Patients With Access to Modern Treatments

24/7

Emergency Support Available

Our Programs & Services

HAE Nepal offers a comprehensive range of programs and services designed to support patients, educate healthcare providers, and raise awareness about HAE throughout Nepal.

Patient Support Network

Connect with other HAE patients across Nepal through our support groups, online forums, and annual patient meetings.

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Medical Professional Education

We provide training and resources to healthcare providers to improve diagnosis and treatment of HAE across Nepal.

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Emergency Treatment Access

Working to ensure HAE patients have access to life-saving treatments during acute attacks through our emergency program.

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Advocacy & Policy

Advocating for improved healthcare policies, insurance coverage, and recognition of HAE as a serious medical condition.

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Educational Resources

Developing and distributing educational materials about HAE in Nepali and other local languages.

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Family Testing Program

Supporting genetic testing for family members of HAE patients to identify those at risk and provide early intervention.

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Impact Stories

Real stories from HAE patients in Nepal whose lives have been transformed through support, education, and proper treatment.

Priya Sharma

Priya Sharma

Kathmandu

"After suffering for 12 years with unexplained swelling attacks, HAE Nepal helped me get properly diagnosed. Now I have an emergency treatment plan and haven't been hospitalized in over a year."

Diagnosed in 2021
Rajesh Thapa

Rajesh Thapa

Pokhara

"The support group has been life-changing. Before, I felt alone with this condition. Now I have a community who understands what I'm going through and helps me navigate treatment options."

Diagnosed in 2018
Anita Gurung

Anita Gurung

Chitwan

"Thanks to HAE Nepal's family testing program, my daughter was diagnosed early. Unlike me, she won't have to spend years wondering what's wrong or face dangerous delays in treatment."

Diagnosed in 2019

Resources

Access educational materials, treatment information, and support resources for HAE patients and healthcare providers in Nepal.

For Patients

  • Patient Emergency Card (Nepali)
  • HAE Treatment Guide
  • Living with HAE Handbook
  • Travel Tips for HAE Patients
  • HAE Attack Tracking Journal

For Healthcare Providers

  • HAE Diagnostic Algorithm
  • Treatment Protocol Guidelines
  • Emergency Department HAE Guide
  • Laboratory Testing Information
  • HAE Specialist Referral Network

General Information

  • What is HAE? (Multiple Languages)
  • HAE Nepal Annual Report
  • Upcoming Events Calendar
  • Newsletter Archive
  • Media Kit & Press Releases

Contact & Support

Reach out to HAE Nepal for support, information, or to get involved with our mission to improve the lives of HAE patients across Nepal.

Get in Touch

Contact Information

Office Address

Kamaladi, Kathmandu 44600, Nepal

Phone

+977 1 4444555 (Office)

+977 9801234567 (24/7 Emergency Hotline)

Email

info@haenepal.org

support@haenepal.org

Office Hours

Monday - Friday: 9:00 AM - 5:00 PM

Saturday: 10:00 AM - 2:00 PM

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