Hereditary Angioedema (HAE) Nepal is dedicated to improving the lives of those affected by HAE through awareness, education, and support.
Hereditary Angioedema (HAE) is a rare genetic disorder characterized by recurrent episodes of severe swelling that can affect various parts of the body, including the face, limbs, intestinal tract, and airways. These attacks can be painful, debilitating, and potentially life-threatening.
In Nepal, many HAE patients face significant challenges including limited access to specialized healthcare, delayed diagnosis, and lack of appropriate treatments. HAE Nepal was established to address these issues and provide much-needed support to the Nepalese HAE community.
We are committed to improving the quality of life for people with HAE in Nepal through advocacy, education, and support. We work to ensure that every HAE patient in Nepal has access to accurate diagnosis, effective treatment, and the resources they need to manage their condition.
Estimated HAE Patients in Nepal
Years Average Delay in Diagnosis
Patients With Access to Modern Treatments
Emergency Support Available
HAE Nepal offers a comprehensive range of programs and services designed to support patients, educate healthcare providers, and raise awareness about HAE throughout Nepal.
Connect with other HAE patients across Nepal through our support groups, online forums, and annual patient meetings.
Learn MoreWe provide training and resources to healthcare providers to improve diagnosis and treatment of HAE across Nepal.
Learn MoreWorking to ensure HAE patients have access to life-saving treatments during acute attacks through our emergency program.
Learn MoreAdvocating for improved healthcare policies, insurance coverage, and recognition of HAE as a serious medical condition.
Learn MoreDeveloping and distributing educational materials about HAE in Nepali and other local languages.
Learn MoreSupporting genetic testing for family members of HAE patients to identify those at risk and provide early intervention.
Learn MoreReal stories from HAE patients in Nepal whose lives have been transformed through support, education, and proper treatment.
Kathmandu
"After suffering for 12 years with unexplained swelling attacks, HAE Nepal helped me get properly diagnosed. Now I have an emergency treatment plan and haven't been hospitalized in over a year."
Pokhara
"The support group has been life-changing. Before, I felt alone with this condition. Now I have a community who understands what I'm going through and helps me navigate treatment options."
Chitwan
"Thanks to HAE Nepal's family testing program, my daughter was diagnosed early. Unlike me, she won't have to spend years wondering what's wrong or face dangerous delays in treatment."
Access educational materials, treatment information, and support resources for HAE patients and healthcare providers in Nepal.
Reach out to HAE Nepal for support, information, or to get involved with our mission to improve the lives of HAE patients across Nepal.